So here it is in one simple email so I dont have to tell the story over and OVER again..
WE all know that Dalton has had mysterious rashes and random fevers for sometime now, technically it started when he was 12 weeks old.
Ok long story short we saw the Infectious Disease Doctor today at Childrens Mercy.
Heres what he said:
1. I am not crazy, this is real
2. its not a virus!
3. Its not an infection!
4. it IS auto-immune related
5. we could not do any testing today because my ped. had put him on a steriod yesterday which makes false tests. So in 10 days I go to CM South for lab work.
He also thinks that we wont be in infectious disease department long because this is going to be a rhuematology/endocrinology case.
but we will start baseline testing with them.
He is also going to test for certain things that he highly thought of when he was looking at daltons chart this morning.
Now, do your own research because I am just starting on mine. These are the top 4 things:
Angioneurotic Edema
Mast Cell Disease
Juvenile Idiopathic Arthritis
Sarcocdosis
I have nothing else at this point and I am worn out, we are all fine and happy, just exhausted and yearning for an answer.....which I know will take awhile to find but I finally feel like we are on a good road.
Hey ya'll IM NOT CRAZY!
WE all know that Dalton has had mysterious rashes and random fevers for sometime now, technically it started when he was 12 weeks old.
Ok long story short we saw the Infectious Disease Doctor today at Childrens Mercy.
Heres what he said:
1. I am not crazy, this is real
2. its not a virus!
3. Its not an infection!
4. it IS auto-immune related
5. we could not do any testing today because my ped. had put him on a steriod yesterday which makes false tests. So in 10 days I go to CM South for lab work.
He also thinks that we wont be in infectious disease department long because this is going to be a rhuematology/endocrinology case.
but we will start baseline testing with them.
He is also going to test for certain things that he highly thought of when he was looking at daltons chart this morning.
Now, do your own research because I am just starting on mine. These are the top 4 things:
Angioneurotic Edema
Mast Cell Disease
Juvenile Idiopathic Arthritis
Sarcocdosis
I have nothing else at this point and I am worn out, we are all fine and happy, just exhausted and yearning for an answer.....which I know will take awhile to find but I finally feel like we are on a good road.
Hey ya'll IM NOT CRAZY!
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